The wet hair haha #fyp #chronicillness #gastroparesis #ngtube #njtube #feedingtube #awareness #katespadenyhappydance

Setting up feeding tube feeds, ask questions! #fyp #chronicillness #gastroparesis #paralyzedstomach #ngtube #HoldMyMilk #InTheHeightsChallenge

Paisley is very excited about this!!! #paisleysfight #ngtube #nomoretubie #fyp #neuroblastoma #childhoodcancer #biggirl

Our morning routine with twins with reflux and a NG tube. #preemie #twins #newborntwins #newdad #ngtube #tubielife #tubiebaby #ngtubeawareness

Come and take out my old nj tube with me!🩶 #njtube#nj#feedingtube#feedingtubeawareness#ngtube#ng#rylestube#ryles#drainage#drainagetube#tube#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#pots#eds#chronicpain#chronicfatigue#farigue#disabled#disanledmumm#disable

#foryou #fyp #gastroparesis #intestinaldysmotility #jejunostomy #ehlersdanlossyndrome #ngtube #njtube

My NJ tube is in the wrong place so come and take it out with me!➰❤️ #remove#my#tube#with#me#njtube#nj#ngtube#ng#feedingtube#feedingtubeawareness#ryles#rylestube#drain#drainage#drainagetube#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled

WHEW it was a wild night at the Vaughn-Trainor household 😅😅😅 #newborn #newparents #newborntwins #ngtube #ngtubeawareness #tubielife #tubiebaby #sleepdeprived

Three months of loving Harlow and Monroe 🫶🏼 We can’t believe it’s already three months 😭😭 they’ve been through so much and overcome so much! They’ve gotten so big 😭 #threemonthsold #twingirls #newdad #preemiebaby #ngtube #ngtubeawareness

Hope this helps at least one person! Im not expert but this has defintiely sped up the process! #ngtube #tubielife #tubiebaby #ngtubeawareness

#สายยางให้อาหารทางจมูก #ngtube #นักศึกษาพยาบาล #tiktokuni #สอนให้รู้ว่า #มากกว่า60วิ #สังคมต้องรู้ #รู้หรือไม่ #พยาบาลอัญ #aunnyc

How i do shots with an NG tube (I’m 28, this is safe as it just goes straight into my stomach, no I am not irresponsible) #ngtube #chronicillness #ngtubeshots

Update soon guys. Bare with me #fyp #AI #scar #ngtube #stitches #mentalhealth

When life gives you 🍋 make 🍸#ngtubeshots #ngtube #chronicillness

NG tube insertion #ngtube #ngtubeawareness #chronicillness

🎶“I’m coming home, I’m coming home, tell the world I’m coming home”🎶 #imcominghome#im#coming#home#hospital#patient#ngtube#ng#njtube#nj#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledcreator#creator#lipsync

So annoyed that I forgot to change to 60 seconds but thought it was too cute to not post! For anyone wondering Lilli fell off a balance bike and landed on the side of her face hence all the grazes!🥰❤️ #moana#disney#disneyprincess#princess#lipsync#trend#trending#mummyanddaughter#motheranddaughter#daughter#mum#mummy#mumma#mama#mumlife#mumof2#disabled#disabledmum#ngtube#ng#njtube#nj#feedingtube#rylestube#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue

Come with me as I do my night time meds and set up my fluids/feed!➰❤️ #nighttime#nighttimeroutine#routine#meds#med#medicine#medicines#feed#fluids#ngtube#ng#njtube#nj#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledcreator#creator#hospital#inpatient#patient

Come and do my sub-cut meds with me!💉❤️ #subcut#subcutmeds#subcutaneousinjection#subcutaneous#meds#medicine#medicines#ngtube#ng#njtube#nj#rylestube#ryles#drain#drainagetube#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum

Come and change my tubie tape with me! Today I went for blue and green dinos to match my jumper!🦖🦕 #tube#tubie#tubietape#tape#ngtube#ng#rylestube#ryles#drainagetube#feedingtube#feedingtubeawareness#jej#surgicaljej#surgicaljejunostomy#ileostomy#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabledmum#disabledmummy#mumof2

Come and spend the day with me hospital edition!👩🏻‍⚕️💉🏥 #comeandspendthedaywithme#come#and#spend#the#day#with#me#dayinthelife#hospital#hospitaledition#edition#cannula#iv#fluids#antibiotics#abscess#cellulitis#ngtube#ng#njtube#nj#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled

Come and take my NJ tube out with me! Hopefully tomorrow I won’t have the need for my NJ tube anymore if my surgery all goes to plan!🤞🏼❤️ #njtube#nj#tube#removal#tuberemoval#njtuberemoval#feedingtube#feedingtubeawareness#ngtube#ng#rylestube#ryles#drainagetube#drainage#drain#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy#mumof2#mummyof2

My tube has yet again failed me… I know this can be a little bit gory but I have had people ask me what it’s like to take it out so I thought I’d just show the process!➰❤️ #njtube#nj#tuberemoval#tube#removal#ngtube#ng#rylestube#ryles#drainagetube#drainage#drain#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy#mumof2

Come and change my stickers with me! My skin has been quite inflamed recently so I have had to go back to the basics and use tegaderm for a week or so to let my skin calm down!😭❤️ #tube#feedingtubeawareness#feedingtube#ngtube#ng#njtube#nj#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledcreator#creator

Come and replace my NG/RYLES tube with me! I use my NG/RYLES tube to drain my stomach of any stomach contents and/or any drainable food/drinks I consume orally!❤️‍🩹 #ngtube#ng#rylestube#ryles#drainagetube#drainage#drain#njtube#nj#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy#mumof2#warrior#igotthis

Archi has been so clingy with me recently, he wanted a cuddle whilst I was filming so I decided to give him a hug and film some more content whilst he was settled on me!🥰❤️#motherandson#mummyandson#mumandson#son#mummy#mumma#mama#mum#mumlife#mumof2#disabledmum#disabled#ngtube#ng#njtube#nj#feedingtube#rylestube#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#moana#lipsync#disney#disneysongs

Do better US State Department, who would stick an NG tube in a baby just for a passport picture? #disabilityawareness #disabilitypridemonth #ngtube #baby #momsoftiktok #passport

🎶“I CAN’T HEAR YOU, I DON’T FEAR YOU”🎶 #speakup#icanthearyouidontfearyou#icanthearyou#idontfearyou#lipsync#pickmeup#song#ngtube#ng#rylestube#rylestube#drainagetube#drain#njtube#nj#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#nead#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#mumof2

Lilli loves this dance now!😍❤️ #motheranddaughter#mummyanddaughter#mum#mummy#mumma#mama#daughter#mumlife#disabledmum#disabled#dance#dancing#ngtube#ng#njtube#nj#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#chronicfatigue#pain#fatigue

Come and get my NJ tube replaced with me!➰❤️ #njtube#nj#feedingtube#feedingtubeawareness#endoscopy#endoscope#nasalendoscopy#ngtube#ng#rylestube#ryles#drainagetube#drainage#drain#gastroparesiepilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmumma

Come with me as I get admitted to hospital for cellulitis in my arm!❤️‍🩹 #hospital#hospitallife#admitted#admittedinhospital#ambulance#cellulitis#infection#infections#ngtube#ng#rylestube#ryles#drainagetube#drainage#drain#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy#itsokaytonotbeokay

Here is little chat I had with Lilli before I had my surgery, I like to tell her a little bit about what is happening so she isnt so scared and worried!💕 #motheranddaughter#mummyanddaughter#hearttoheart#surgery#operation#jejunostomy#jejunostomytube#ngtube#ng#rylestube#ryles#drainagetube#drainage#njtube#nj#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabledmum#disabledmummy

Lilli wanted to learn this dance so l taught her it! This was her first try and she was still a bit unsure but I think she did amazing considering it was her first proper go!💕 #dance#dancing#motheranddaughter#mummyanddaughter#mum#mummy#mumma#mama#mumof2#disabledmum#disabled#ngtube#ng#njtube#nj#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#faitigue#altontowers#alton#towers

Come with me as I finally get my surgical jejunostomy surgery!❤️‍🩹 #hospital#hospitallife#operation#surgery#surgicaljejunostomy#jejunostomy#jej#feedingtube#feedingtubeawareness#pain#nausea#sickness#cannula#ngtube#ng#rylestube#ryles#drainagetube#drainage#njtube#nj#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy

PS: naghugas muna ako ng kamay at nag alcohol bago ko lagyan si baby ng ngt nakalimutan kong sabihin sa voice over hehe😅❤️#ngtube #ngt #babywarrior #hiebaby #littlewarrior #baby #spreadlovenothate

Another draft from Saturday night! Lilli always asks me to do the wakawaka dance when I’m filming tiktoks!😍❤️ #wakawakadance#wakawaka#shakira#dance#dancing#motheranddaughter#mummyanddaughter#mum#mummy#mumma#mama#daughter#mumof2#mumlife#ngtube#njtube#nj#drainagetube#drainage#drain#ryles#rylestube#feedingtube#feedintubeawareness#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum

Come and do my sub-cut meds and fluids with me!💉➰❤️ #subcut#subcutaneous#subcutaneousinjection#fluids#fluid#meds#medicine#ondansatron#ngtube#ng#rylestube#ryle#drain#drainagetube#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled

Lilli saw me doing this dance and asked if she could do it too so of course I said yes! Here is the result!🥰❤️ #wakawaka#wakawakadance#dance#dancing#motheranddaughter#mummyanddaughter#mother#mummy#mum#mumma#mama#daughter#ngtube#ng#njtube#nj#feedingtube#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#mumof2

Come and get my NJ tube replaced with me! Today was a really hard change and I’m not sure why but I think all the medical trauma is just building up inside me and to be honest I just cracked… I just want this nightmare to end…😢💔#endoscopy#endoscope#nasalendoscopy#njtube#nj#feedingtube#feedingtubeawareness#ngtube#ng#ryles#rylestube#tube#drainagetube#drainage#drain#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy#mumof2

Come and spend the day with me hospital edition!🏥❤️‍🩹 #hospital#hospitals#inpatient#patient#dayinmylife#dayinthelife#infection#infections#cellulitis#antibiotics#antibiotic#meds#medicine#ngtube#ng#rylestube#ryles#drainagetube#drainage#drain#venting#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabledmum#disabledmummy#disabled#mumof2#facetime#family#itsokaytonotbeokay

My NJ tube has flipped into my stomach again and my hospital are telling me I have to wait a week to get it changed bearing in mind that this tube gives me medication, feed and fluids… I am just so scared that I will have to go to the hospital if I get poorly due to not being able to have my nutrition and medication…😢💔 #ngtube#ng#njtube#nj#feedingtube#feedingtubeawareness#rylestube#ryles#drain#drainage#drainagetube#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#lipsync

Come and change my tubie tape with me!🦓❤️ #tubietape#tubie#tape#tapes#ngtube#ng#njtube#nj#feedingtube#feedingtubeawareness#rylestube#drain#drainagetube#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#mumof2#lipsync

A very big parcel came off of our amazon wishlist! I am so thankful for everything, these items will help me so much when I’m in hospital so thankyou to whoever sent these items!💜#amazonwishlist#amazon#wishlist#gift#present#thankyou#thanks#unboxing#ngtube#ng#tube#njtube#nj#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledcreator#creator

Come with me as I get my NJ tube replaced! Thankfully my tube was replaced today after not having it for 8 long days… I am so thankful that I can get my feed, fluids and meds tonight!➰❤️ #njtube#nj#feedingtubeawareness#feedingtube#ng#ngtube#rylestube#ryles##drainagetube#drainage#drain#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#disabled#disabledmum#endoscopy#nasalendoscopy#hospital#daypatient#patient

Come and get hopefully my last NJ tube replacement with me!❤️‍🩹 #njtube#nj#tube#feedingtube#feedingtubeawareness#endoscopy#endoscope#nasalendoscopy#hospital#hospitallife#ngtube#ng#rylestube#ryles#drainagetube#drainage#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmummy#disabledmum#mumof2#mummyof2

Replying to @Jams7776 I think you should think before leaving hate comments on other peoples pages… You claim that you are bullied/trolled yet here you are leaving hate on my page!? I think you need to take a look in the mirror!😤💔 #bully#hate#troll#bullying#hating#trolling#badblood#bad#blood#taylor#taylorswift#ngtube#ng#njtube#nj#gastroparesis#epilspy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#mumof2#mum#mummy#mumma#mama

Come and do my sub-cut meds with me!💉❤️ #subcut#subcutaneous#subcutaneousinjection#meds#meds#medicine#ngtube#ng#njtube#nj#feedingtube#feedingtubeawareness#rylestube#ryles#drain#drainagetube#drainage#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledcreator

I filmed this a couple of days ago and wish I was the same Georgia today as today I am sore, exhausted and down… The hospital are still telling me I have to wait until Friday, I know they wouldn’t let someone without my health conditions go without food for 8 days yet I am been left to suffer until they can “squeeze me in”… They don’t see the situation as an emergency which is wrong on so many levels… Things need to change!🥺💔 #gaslight#gaslighting#medicalgaslighting#notlistening#notlisteningtome#ngtube#ng#njtube#nj#feedingtube#feedingtubeawareness#rylestube#ryles#tube#drain#drainagetube#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#dance#dancing#lipsync

Come and take out my NG tube with me! Today when I took my tube out it really hurt as the tube had went rigid, this happens occasionally but sadly when it does it causes alot of pain and discomfort after the tube is removed as it scratches my throat/nose!😢💔 #ngtube#ng#njtube#nj#tube#ryles#rylestube#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledcreator#creator#routine