#daughter #wholesome #doctor #heartwarming #foryou #fyp #heartwarrior #momlife #momsoftiktok #parentsoftiktok #hideandseek

#downsyndrome #alexa #fyp #toddlersoftiktok #4upage #4u #justdance #t21 #smile #SyncYourMiO #heartwarrior #cute #ds #amazon

#onthisday #doctor #heartwarrior #foryou #foryoupage #heartwarming #hideandseek #daughter #momsoftiktok #parents #cute

Please pray for me and donate to my Gofund me if you can, anything is appreciated and the 🔗 is in my bio. #heartwarrior #infection #heartcondition #heartproblems #chronicillnessawareness

Happy 4th Heartiversary to my Heart Warrior!! You are my saving grace, my Heaven on Earth! Never stop fighting baby! #UpTheBeat #CHD #heartwarrior

Pump the breaks bud. #heartfailure #heartdisease #aorticstenosis #ppcm #afib #cardiomyopathy #pacemaker #hearttransplant #tavr #ablation #bloodclot #watchman #imtired #imscared #itsalot #mentalhealth #anxiety #fighter #mayohospital #Vanderbilt #DukeHospital #MomTiktok #KeepFighting #DontGiveUp #Anesthesia #HeartWarrior #invisibleillness #husbandwife #happyfathersday #fathersday #hokiepokie #turnaround

Please help me pay for care,treatment and travel + housing to travel by donating to my GOFUND me. I truly need everyone who cares and supports me to come together and pray,fight and donate for me. 💔#chronicillnessawareness #pericarditis #heartproblems #heartwarrior #helpmeplease

Dont mind me, i just have something in my eye watching this 😢 #theprincessprogram #childrenshospital #pediatrics #heartwarrior #elsa #heartwarmingmoments #icequeen #cosplayer #nonprofitsoftiktok #magic #dreamscometrue #makingdreamscometrue #hospitaltiktoks #hospitalvisit #wefightwithmagic

Replying to @xandyxxi baby ko po ay ang mga naging sympthoms before is ganito pawisin, malaki ang dibdib na parang dibdib ng manok, pag dumedede lumalaki butas ng ilong indication na nahihirpan sila dumede o huminga ng ayos kaya mahina mag dede, mabilis mapagod, at hingal kahit konting lakad o laro lang. at higit sa lahat sakitin mabilis dapuan ng virus viral infection pero now si janloyd since operated na sya pawisin parin pero di na hingal, di nadin mabilis mapagod, masigla tumaba nadin at mas lumakas na sya mag dede at kumain ng solid food pero since may asthma din sya mabilis apfin sya dapuan ng viral infection or viruses. #fy #fypシ #fypシ゚viral #fyppppppppppppppppppppppp #heartwarrior #heartmom #vsd #mommyjaaaa #babyjanloyd

After the open-heart surgery, we spent a month in Dallas to recover. During that time, we embraced the opportunity to explore and discover many wonderful places, turning our recovery journey into an inspiring adventure #openheartsurgery #openheartsurgerysurvivor #heartwarrior #vsd #pda #toddlermom #myson #emotional #kids #toddler #toddlersoftiktok #god #godisgood #traveltiktok #travelthrowback #traveling #godanswersprayers #emotional #sick #travel #dallas #creatorsearchinsights #momsoftiktok @Creator search insights

Nadine is 1/100😍 #nadines_heart #chd #heartwarrior #chdawarness #summer #heartmom #disneybaby #toddlerlifebelike

February is #AmericanHeartMonth! Heart Warriors are so reslient. Let’s celebrate our zippers! Share your #HeartWarrior’s story in the comments and head to our website to learn more about #HeartHealth and #DownSyndrome! ❤️‍🩹

Hellooooo to all my new followers 👋🏻🫶🏻 If you are new here… my names Isaac im 6 years old and have Wolf Hirschhorn Syndrome 🧬 ❤️ Ive overcome so much just the last few years and i make all my friends and family super proud 🥰 This is just a short clip of my surgery i had 2 years ago now! Thank you everyone for the amazing support 🫶🏻❤️ #isaackearney #heartwarrior #openheartsurgery #wolfhirschhornsyndrome

#chd #elysemyers #vsd #heartwarrior #heartwarriorbaby #heartwarriorbaby #avsd

Update : He is the first cardiologist to actually consider surgery for me despite the risk and I’m so thankful for him. 💔🙏🏾 #pericarditis #chronicillnessawareness #heartwarrior #heartproblems #helpmeplease

February is heart month & also the 3 year anniversary of our amazing little guys first surgery.🥹 We are so proud if him every day, and always holding our breath for his first OHS. 🙏🏼❤️ #heartmama #heartwarrior #heartsurgery #aorticstenosis #chd #childheartdisease

Bisbee is a beaut! But if you’re disabled its 100% a challenge to get around. Especially for wheelchairs So DO RESEARCH 🗣️🗣️ #disabilityawareness #raredisease #accessibility #disabledtravel #heartwarrior #pride #bisbee #arizona #whataburger #vascularehlersdanlos #wlw #interabledcouple #wlwcouple

This week has been an emotional week for me. June had her open heart surgery on St. Patrick’s Day and we found out that we were pregnant with John on St. Patrick’s Day. World Down Syndrome Day is March 21st just 4 days later, spending so many firsts at the hospital were rough. We are so happy to be making new memories this year. 💛💙💛💙 #worlddownsyndromeday #momlife #motherhood #downsyndrome #momlife #heartwarrior #chd

Id love any recommendations of what else i need to bring for a hospital stay with a 2 year old? #youngmum #soloparent #soloparenting #mumof2 #2under5 #tubefedtoddler #heartwarrior #openheartsurgeryawareness #surgery #hospital #foryourpage #foryouu #foru #fyp #4u

The story behind the piece ❤️: My baby is home 🩵 It’s even more beautiful than I imagined 😭 This is Bentley. He was diagnosed with Hypoplastic Left Heart Syndrome during our 20 week anatomy scan. At 3 weeks old he was placed on the transplant list. At 3 months old he had a stroke due to a blood clot breaking loose, which is what ultimately took his life. But now my baby will be with me wherever I go ❤️ #memorialjewelry #infantloss #hlhswarrior #heartwarrior #hlhs #ashes #babyhair #memorialbreastmilkjewelry #childloss #ashjewelry #imissyou #preciouspieces #treeofhopecreations

#CapCut p sure when I get cremated it’ll just be turbo dust LOL #disabilityawareness #hotchips #raredisease #heartwarrior #accesibility #daniadventures #sunset #arizona

Took a break from tiktok as life has been super busy at the moment 🥰 #youngmum #singlemum #toddlermama #2under5 #girlmum #ngtubeawareness #heartwarrior #lifeupdate #foryoupage #foryou #foru #fyp #4u

I’m the girl who “keeps going.” No matter what!! ❤️ #blacktiktok #tiktokpartner #longvideos #heartwarrior #gidoctor #colonscopy #mayoclinic #weeklyvlog #diml #chronicillnessawareness #vlogger

Masyallah berasa mimpi siang bolong… ternyata asd 5 ml anak ku sisa 1 ml sekarang rasa hati pengen saweran😭 dokter bilang sudah jd jantung normal di usia segini. Tp mungkin PFO ini jika belum nutup sampai usia 17 th barulah akan di cateter. Jd skrng semua aman terkendali 🥹 cubit aku makkk lg mimpi ini… #haiucel #downsyndrome #anakhebatku #heartwarrior

i didnt die so the baby isnt being named after me 🙄 LOLOL #disabilityawareness #raredisease #accessibility #heartwarrior #arizona #wlw #interabledcouple #genderreveal #daniadventures #fyp

Explaining that I have a rare vascular disorder to rando old people lowers my life expectancy even more LOL #CapCut #disabilityawareness #raredisease #veds #heartwarrior #ehlersdanlos #daniadventures #disabledfashion

“I’m gonna cry.. I’m gonna cry” – Alexie upon receiving his big surprise Alexie is an awesome teen who thinks “superhero” at all times.  He has been searching the hospital high and low for superhero toys to help him cope through his medical journey.  He has Down Syndrome and was born with congenital heart problems. He has endured multiple procedures, surgeries, and long hospitalizations over the years, but that doesn’t stop his overflowing joy of the little things in life.  Today he was granted the 24,000th little wish and is our Little Wishes #superhero #littlewishes #hospital #hope #downsyndrome #heartwarrior #childlifespecialist #nurses #doctors #joy

Celebrating 6 months of being hospital free 🥹🤍 #godisgood #heartfailure #heartdisease #aorticstenosis #ppcm #afib #cardiomyopathy #pacemaker #hearttransplant #tavr #ablation #bloodclot #watchman #imtired #imscared #itsalot #mentalhealth #anxiety #fighter #mayohospital #Vanderbilt #DukeHospital #MomTiktok #KeepFighting #DontGiveUp #Anesthesia #HeartWarrior #invisibleillness

Tavia definitely keeps me on my toes 😂 #youngmum #singlemum #toddlermama #mumof2 #2under5 #ngtubeawareness #heartwarrior #tubefedtoddler #foryoupage #foryou #foru #fyp #4u

Replying to @Tara🤍 #youngmum #singlemum #toddlermum #mumof2 #tubefedtoddler #ngtubeawareness #peg #feedingtubelife #heartwarrior #heartcondition #poorweightgain #foryoupage #foryou #foru #fyp #4u