another draft oops #tubie#tubielife#feedingtubeawareness#njtube#njtubie#gastroparesis#dysmotility#heds#ehlersdanlos#ehlersdanlossyndrome#stomachissues#stomachproblems#gastroissues#dysautonomia#pots#potsie#potssyndrome#tubietape#tapechange#medical#disability#chronicillness#spoonie#zebrastrong#mytummyhurts

Replying to @CaLi_lOvEs_yOu4 lmao i filmed this a week and a half ago #tubie#feedingtubeawareness#njtube#njtubie#gastroparesis#dysmotility#heds#ehlersdanlos#ehlersdanlossyndrome#stomachissues#stomachproblems#gastroissues#dysautonomia#tubietape#medical#chronicillness#chronicallyill#spoonie#spoonielife#zebra#chronicillnessawareness#disability#disabilitypride

Replying to @dilynntrowbridge6 happy 4th! #tubie#feedingtubeawareness#njtube#njtubie#gastroparesis#dysmotility#heds#ehlersdanlos#ehlersdanlossyndrome#stomachissues#stomachproblems#gastroissues#dysautonomia#chronicillness#chronicallyill#spoonie#spoons#zebra#medical#chronicillnessawareness#disability#disabilityawareness#disabilitypride#disabilitypridemonth#disabledjoy#pride#disney#liloandstitch#stitch#cute#tubietape#tapechange

Enjoy😭 #fyp #fypシ #tutorial #tape #tubietape #tubietapechange #awareness #spreadingawareness #feedingtube #feedingtubeawareness #njtube #njtubeawearnes #ruminationsyndrome #ruminationsyndromeawareness

im sleeeeepy. thats all #tubie#feedingtubeawareness#njtube#njtubie#gastroparesis#dysmotility#heds#ehlersdanlos#ehlersdanlossyndrome#stomachissues#stomachproblems#gastroissues#dysautonomia#tubietape#tapechange#medical#chronicillness#chronicallyill#spoonielife#spoonie#zebra#zebrastrong#gp#heds

#onthisday what a throwback omg #tubie #feedingtubeawareness #ngtubie #njtube #njtubie #gjtube #stomachproblems #stomachissues #heds #gastroparesis #tapechange #tubietape

ignore the pure chaos of the final 7 seconds. thats all. #tubietape#tubie#tubietape#spoonie#chronicillness#gastroparesis#njtube#tubielife#ehlersdanlos#heds#ehlersdanlossyndrome#tubefed#njtubie#feedingtubeawareness#stomachproblems#stomachissues#mytummyhurts#gastroissues#medical#dysmotility#tubefed#tubielife

my only motivation to take my allergy meds #feedingtubeawareness#tubietape#tubie#spoonie#chronicillness#gastroparesis#njtube#tubielife#ehlersdanlos#heds#stomachproblems#stomachissues#dysmotility#pots#dysautonomia#smallbuisness#taylorswift#erastour#taylorfilter

Come and change my tubie tape with me! Today I went for blue and green dinos to match my jumper!🦖🦕 #tube#tubie#tubietape#tape#ngtube#ng#rylestube#ryles#drainagetube#feedingtube#feedingtubeawareness#jej#surgicaljej#surgicaljejunostomy#ileostomy#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabledmum#disabledmummy#mumof2

Check out @Tubie Life on etsy or else i will be under your bed👹😍💅🏻 #fyp #fypシ #unboxing #tubietape #tape #awareness #spreadingawareness #feedingtube #feedingtubeawareness #njtube #njtubeawearness #ruminationsyndrome #ruminationsyndromeawareness

i think this draft is a good 8months old oops. #tubie#tubielife#feedingtubeawareness#njtube#gjtube#gjtubie#tapechange#tubietape#heds#chronicillness#ehlersdanlos#stomachissues#gastroparesis#stomachproblems#ifiwereafish#njtubie#draft#fyp

Come and change my tubie tape with me!🦓❤️ #tubietape#tubie#tape#tapes#ngtube#ng#njtube#nj#feedingtube#feedingtubeawareness#rylestube#drain#drainagetube#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#mumof2#lipsync

Replying to @imso_aswome1 clearing out drafts while i heal from surgery #tubie#feedingtubeawareness#njtube#GJtube#njtubie#ghtubie#eds#heds#ehlersdanlos#gp#gastroparesis#giissues#stomachissues#stomachissues#mytummyhurts#tapechange#tubietape#surgery#tubefed

Replying to @Luna tubie pad from the amazing @jen !! anyways look at me actually filming wow #tubie#tubielife#feedingtubeawareness#gjtube#gjtubie#tubiepad#tapechange#tubietape#heds#ehlersdanlos#chronicillness#piccline#picclinecare#picclinelife#gtube#mickeybutton#gastroparesis#stomachissues

mmmm tasty #tubie#feedingtubeawareness#njtube#njtubie#gastroparesis#dysmotility#heds#ehlersdanlos#ehlersdanlossyndrome#stomachissues#stomachproblems#gastroissues#dysautonomia#tubietape#medical#chronicillness#chronicallyill#spoonielife#spoonie#zebra#katefarms

is this a draft, maybeeeeee but thats ok #feedingtubeawareness#tubietape#tubie#spoonie#chronicillness#gastroparesis#njtube#tubielife#heds#ehlersdanlos#stomachproblems#stomachissues#mytummyhurts#dysautonomia#medical#hospital#medicalzebra

Come and change my tapes with me!💖 #tape#tapes#tubietape#ngtube#ng#rylestube#ryles#drainagetube#drainage#drain#njtube#nj#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigufatigue#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#mumof2

Replying to @Elno White DRAFT boho sloths!!! i have so so so many sloth tapes i love them #tubie#tubielife#feedingtubeawareness#njtube#njtubie#gastroparesis#dysmotility#heds#ehlersdanlos#ehlersdanlossyndrome#stomachissues#stomachproblems#gastroissues#dysautonomia#pots#postie#potssyndrome#tubietape#tubietapechange#medical#chronicillness#chronicillnessawareness#spoonie#spoonielife#zebra#medical

Come and change my tapes with me! Today I had to go simple with a tegaderm as my face was abit red, my skin does this from time to time and I’m not sure why!?❤️‍🩹 #change#my#tape#with#me#tegaderm#sticker#tubietape#tube#feedingtube#rylestube#ryles#ngtube#ng#njtube#nj#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum

a draft BUT IM HOME! • #tubie#tubielife#chronicillness#chronicillnessawareness#njtube#njtubefeed#feedingtubeawareness#gastroparesis#gp#giissues#stomachproblems#ehlersdanlos#ehlersdanlossyndrome#heds#stomachissues#tubietape#medical#medicaldevice#njtubie#dysmotility#chronicillness#spoonie#spoonielife#medicalzebra#zebra#hedgehog

Tape change day! This gorgeous tape is from @TubiePlus 🩷 #tubietape#tubie#tape#tubieplus#ngtube#ng#rylestube#ryles#drainagetube#drainage#tube#jej#jejtube#jejunostomy#jejunostomytube#surgicaljejunostomy#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy#mumof2#mumlife

Come and change my tapes with me!➰❤️ #change#my#tapes#with#me#tubietape#tape#ngtube#ng#njtube#nj#rylestube#ryles#drain#drainagetube#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#uc#nead#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled

#stitch with @julia ! oh my gosh #shelleyduvall#tubie#tubielife#chronicillness#chronicillnessawareness#disabilitypridemonth#disability#njtube#njtubie#feedingtubeawareness#gastroparesis#gp#giissues#stomachissues#stomachproblems#ehlersdanlos#ehlersdanlossyndrome#heds#tubietape

Come and change my tubie tape with me! My tubie tape today is from @FunkyTapes 🩷 #tubietape#tubie#tape#feedingtube#feeding#tube#feedingtubeawareness#ngtube#ng#njtube#nj#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum

Thankyou so much Alice at @TubiePlus for creating a bundle that suits my needs! I cannot wait to purchase more designs soon!😍❤️ #tubieplus#tubie#tubietape#tubiepads#tubiepad#tubieclip#tubieclips#butterfly#butterflies#zebra#zebraprint#ngtube#ng#rylestube#ryles#drainagetube#drainage#njtube#nj#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy#mumof2

this was an old draft that i had different plans for but uh im still here just not rlly filming or posting for now but im alive #tubie#tubielife#chronicillness#chronicillnessawareness#njtube#njtubefeed#tubefeed#feedingtubeawareness#heds#ehlersdanlos#iv#hospital#medical#stomachproblems#stomachissues#ehlersdanlossyndrome#gastroparesis#gastroissues#stomachissues#tubietape#njtubie

Replying to @Alycia 23hrs to go ahhh #grwm#tubie#feedingtubeawareness#njtube#smallbuisness#etsyshop#tubietape#ngtube#tubielife#tubiebaby#feedingtubebaby#disability#gastroparesis#ehlersdanlos#ehlersdanlossyndrome#heds#pots#potsie#dysautonomia#giissues#tapechange#hedgehog

Come and change my tapes with me christmas/winter edition!🐧 #tubiecheeks#tubietape#tubie#tape#ngtube#ng#rylestube#ryles#drainagetube#drainage#drain#njtube#nj#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy#mumof2

im just vibing. not happily #tubie#tubielife#feedingtubeawareness#njtube#njtubie#gastroparesis#dysmotility#heds#ehlersdanlos#ehlersdanlossyndrome#stomachproblems#stomachissues#gastroissues#dysautonomia#pots#potsie#potssyndrome#tubietape#tapechange#medical#hospital#hospitalhumor#hospitalized#pink#barbie#barbiemovie

Dancing all my stresses away! Wearing my new tubie tape from @FunkyTapes 🤍🖤 #tubie#tubietape#funkytapes#tape#feedingtube#feeding#tube#feedingtubeawareness#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#pots#fatigue#chronicfatigue#pain#chronicpain#disabled#disabledmum#mumof2#mummy#dance#dancing#dancingitout#stress#destress

Come and change my tapes with me!🥰❤️ #tape#tubietape#ngtube#ng#njtube#nj#rylestube#ryles#tube#drainagetube#drainage#drain#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#mumof2

Come and change my tubie tape with me! My tape is from @Tubie Cheeks today!🦋 #tubietape#tubie#tape#feedingtube#feedingtubeawareness#awareness#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#chronicfatigue#pain#fatigue#disabled#disabledmum#mumof2#mum#mummy#mumma#mama

when i say i am quite afraid that is an underststement. and the dumbest part is its a procedure ive had before like ????♥️ TAPES FROM @kenna and @joy by j&j ♥️ • • • #tubie#feedingtubeawareness#njtube#njtubie#gastroparesis#dysmotility#heds#ehlersdanlos#ehlersdanlossyndrome#stomachissues#stomachproblems#gastroissues#dysautonomia#pots#potsie#potssyndrome#tubietape#tapechange#medical#chronicillness#chronicallyill#spoonielife#spoonie#zebra

Replying to @Mia🤍🌊 BUT i am finally home :) but pls i dont want to go into a lot of this rn bc its overwhelming so pls respect that :) #tubie#tubielife#feedingtubeawareness#feedingtube#gastroparesis#heds#ehlersdanlos#ehlersdanlosdyndrome#stomachissues#stomachproblems#gastroissues#gastroenterology#hospital#dysautonomia#pots#potsie#potssyndrome#tubietape#hypermobility#nutrition#mytummyhurts#fypシ

Change my tubie tape with me! My tape today is from @FunkyTapes 🥰❤️ #tubie#tubietape#tape#funkytapes#feedingtube#feeding#tube#awareness#feedingtubeawareness#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#gerd#chronicfatigue#fatigue#chronicpain#pain#disabled#disabledmum#mumof2#mummy#mumma

Come and change my tubie tape with me! My tape is from @Tubie Cheeks today!🍋 #tube#tubie#tubietape#tape#tubiecheeks#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#mumof2#mum#mummy#mumma#mama

Come and change my tubie tape with me! @FunkyTapes have kindly set up a special deal for anyone who wants to order tapes you can get 4 tapes for £5 and all proceeds are going towards my travel/medical insurance to go to disneyland with my family as with all my health conditions insurance can sometimes be the most expensive part! If you go onto their website funkytapes.com click on their menu and then “redeem coupon” it will ask you for a code so you need to type “Paris” and then redeem it will then let you choose your tapes!➰❤️ #tubietape#tubie#tape#ngtube#ng#njtube#nj#ryles#rylestube#drain#drainagetube#feedingtube#feeding#tube#feedingtubeawareness#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#mumof2#lipsync#unstoppable

Come and change my tubie tape with me! Today I am using my giraffe print tape from @FunkyTapes 💕 #tubie#tubietape#tape#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#mumof2#mum#mummy#mumma#mama

Come and change my tubie tape with me! @FunkyTapes have kindly set up a special deal for anyone who wants to order tapes you can get 4 tapes for £5 and all proceeds are going towards my travel/medical insurance to go to disneyland with my family as with all my health conditions insurance can sometimes be the most expensive part! If you go onto their website funkytapes.com click on their menu and then “redeem coupon” it will ask you for a code so you need to type “Paris” and then redeem it after that you will be able to choose your tapes!🤎🤍🖤 #tubietape#tubie#tape#funkytapes#mickeymouse#mickey#disney#disneytape#ngtube#ng#njtube#nj#rylestube#drainage#drain#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#nead#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledcreator#disabledmum#mumof2#lipsync#keepgoing#warrior#warriordemilovato#demilovato

@joy by j&j @Justice @julia ! Thank you so much for this tubie tape! I cant wait to wear it and match with sid my sloth! You guys have amazing designs! The fun tape truly helps me feel more confident so I really appreciate it! #joybyjandj #tubietape #feedingtubeawareness #piccline #centralline #medicaldevice #jtube #gtube #empowerment #confidence

Come and change my tubie tape with me! @FunkyTapes have kindly set up a special deal for anyone who wants to order tapes you can get 4 tapes for £5 and all proceeds are going towards my travel/medical insurance to go to disneyland with my family as with all my health conditions insurance can sometimes be the most expensive part! If you go onto their website funkytapes.com click on their menu and then “redeem coupon” it will ask you for a code so you need to type “Paris” and then redeem it will then let you choose your tapes!➰❤️ #funkytapes#tubietape#tubie#tape#ngtube#ng#njtube#nj#feedingtube#feeding#tube#feedingtubeawareness#gastroparesis#epilepsy#fnd#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledcreator#creator#lipsync

Heres a little haul from @Tubie Cheeks 🎁❤️ #tubiecheeks#tubietape#tubie#tape#tummypads#tubieclips#ngtube#ng#rylestube#ryles#drainagetube#drainage#drain#njtube#nj#feedingtubeawareness#feedingtube#gastroparesis#epilepsy#fnd#nead#uc#colitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy

its a bee day. thats all • #feedingtubeawareness#tubietape#tubie#spoonie#chronicillness#gastroparesis#njtube#tubielife#ehlersdanlos#heds#stomachproblems#stomachissues#dysmotility#pots#dysautonomia#smallbuisness#smallbuisnessowner#disability#giissues#tubiebaby

Come and change my tubie tape with me! @FunkyTapes have kindly set up a special deal for anyone who wants to order tapes you can get 4 tapes for £5 and all proceeds are going towards my travel/medical insurance to go to disneyland with my family as with all my health conditions insurance can sometimes be the most expensive part! If you go onto their website funkytapes.com and then click menu and then “redeem coupon” it will ask for a code so you have to put the code “paris” click redeem and then you can choose your tapes!➰❤️#tubietape#tubie#tape#funkytapes#medical#travel#insurance#ngtube#ng#njtube#nj#feedingtube#feeding#tube#feedingtubeawareness#gastroparesis#epilepsy#fnd#ulceraticecolitis#uc#colitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledcreator#creator#lipsync

Check out @Tubie Cheeks range of tubie tapes and more! I cannot wait for my christmas order to come!🦒❤️ #tubiecheeks#tubietape#tubietapes#tapes#tape#hypafix#ngtube#ng#rylestube#ryles#drainagetube#drainage#njtube#nj#feedingtubeawareness#feedingtube#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy#mumof2

Come and change my tapes with me!➰❤️ #change#my#tapes#with#me#tubie#tubietape#tape#ngtube#ng#rylestube#ryles#drainagetube#drainage#drain#njtube#nj#feedingtubeawareness#feedingtube#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy#mumof2

#fyp #trending #richardhammond #didwemarryhim #didwemakeit #alt #feedingtubeawareness #tubefed #njtube #altmum #youngmum #mumsoftiktok #90sbaby #autonomicdysfunction #chronicillness #ehlersdanlossyndrome #eds #tubefed #trending #tubietape

I am so super proud of how far i have come in my little biz. Never would have imagined the amount of support i get from so many. That i am truly humbled and grateful for. Cant wait to see hats coming next 🥰🥰 #tubietape #tubiescrunchie #tubiebackpack #Tubiefamily #Tubieproblems #Tubiehacks #Tubies #Tubiegirl #Tubietoddler #Tubietroubles #Tubiecutie #Tubiestrong #Tubiekid #Groovytubie #tubielife✌🏻

Come and change my tapes with me!💜 #tape#tapes#tubietape#ngtube#ng#rylestube#ryles#drainage#drainagetube#drain#njtube#nj#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy#mumof2

Come and change my tapes with me!❤️ #tubietape#tape#tube#ngtube#ng#njtube#nj#rylestube#ryles#drainage#drainagetube#drain#feedingtube#feedingtubeawareness#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#disabled#disabledmum#disabledmummy