it’s a beach day🤍 #beachvibes #beachday #beach #summervibes #fyp #foryoupage #fy #foryou #fyp #foryoupage #imunstoppable #feedingtubeawareness #chronicillness #smas #vascularcompression #gastroparesiswarrior

the reality. you’re not alone in this fight. #vascularcompression #mals #ncs #maythurnersyndrome #potssyndrome #mastcellactivationsyndrome #ehlersdanlos #mthfr #thoracicoutletsyndrome #superiormesentericarterysyndrome #chronicillnessawareness

SICK GIRL THINGS 🥰 #chronicillness #pots #eds #csfleak #vascularcompression #cci #sih #mcast #chronicpain #migraines

#chronicillness #rarediseaseawareness #superiormesentericarterysyndrome #vascularcompression #vascularcompressionsyndromes #systemiclupuserythematosus #lupus #sjogrenssyndrome #rheumatoidarthritis #hypermobileehlersdanlossyndrome #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #pots #dysautonomia #fibromyalgia #celiacdisease

heres to SMA syndrome diagnosis 🎗️ #smasyndrome #smasyndromeawareness #lupus #sjogrenssyndrome #ehlersdanlossyndrome #rheumatoidarthritis #fibromyalgia #gastroparesis #foryoupage #chronicillness #vascularcompression #vascularcompressionsyndromes #potssyndrome #pots #dysautonomia

I thought I was doing a good thing going to meet a surgeon my hospital referred me to. I can say that it definitely doesn’t feel like a good decision now…🤦🏼‍♀️ #charlisestrong #raredisease #medianarcuateligamentsyndrome #chronicillness #disability #vascularcompression #invisibleillness #nottooraretocare #caraccident #trend #fyp

if only we knew about these illnesses from day one❤️‍🩹 #ehlersdanlos #chronicillness #mthfr #vascularcompression #mals #mcas #potssyndrome #ncs #maythurner #awareness

🫶🏼#chronicillness #pots #eds #vascularcompression #csfleak #mcast #seizures

anyone else get this pain?#chronicpain #chronicillness #pots #eds #vascularcompression #csfleak

I thought I was doing really well these last few weeks but I’m pretty sure I was in denial. I will make a formal health update soon 🤍 #chronicillness #gastroparesis #intestinalfailure #mitochondrialdisease #cpeo #mcas #cvid #vascularcompression #mts #mals #ncs #smas ##pots #hickman #hospital #fyp

No comment #chronicillness #smas #ncs #vascularcompression #gastroparesis #intestinalfailure #mitochondrialdisease #pots #mcas #cvid #hickman #tpn #gjtube #surgery #fyp

I’m sick & tired of being sick & tired #chronicillness #gastroparesis #intestinalfailure #mitochondrialdisease #vascularcompression #smas #mals #ncs #mts #mcas #pots #cvid #hickman #tpn #gjtube #hospital #fyp

am I perfectly healthy now? definitely not. am i better than before though? in some ways yes. everyday is different with symptoms, and some days I have to just rest. its a rollercoaster. But know you’re not alone in your illness. #chronicillness #mals #potssyndrome #smas #ehlersdanlos #vascularcompression #invisibleillness #mcas #chronicillnesslife

Always read your labs and doctors notes! #NutcrackerSyndrome #RareDiseaseDay #VascularCompression

I hope she’s competitively running half marathons. I only got to the training part before my world was turned upside down #chronicillness #mitochondrialdisease #cpeo #gastroparesis #intestinalfailure #vascularcompression #mcas #cvid #pots #centralline #tpn #gjtube #hospital #fyp

In my feelings since today was supposed to be the day I had surgery to help my QOL. I really hope things workout in God’s timing #chronicillness #gastroparesis #intestinalfailure #mitochondrialdisease #vascularcompression #fyp

I swear I saw heaven for a few seconds lmao #chronicillness #gastroparesis #intestinalfailure #mitochondrialdisease #cpeo #vascularcompression #smas #mals #ncs #mts #mcas #pots #cvid #hospital #centralline #tpn #gjtube #fyp

Replying to @user7002376278998 why nose filler can potentially lead to blindness and why botox WOULD NOT! Disclaimer: this video is for educational purposes only. Botox and filler carry serious risk and should only be preformed by a licensed medical provider! #nosefiller #nosefillerbeforeandafters #fillergonewrong #vascularocclusion #vascularcompression #injectables #antiaging #injectorsontiktok #injectorlina

If I don’t text back, it’s rarely personal. Check on your friends & be kind to others #chronicillness #gastroparesis #intestinalfailure #mitochondrialdisease #vascularcompression #mcas #pots #cvid #centralline #gjtube #tpn #hospital #fyp

#vascularcompression #mals #ncs #smas #mts #godsplan #godsgotthis #itrustyougod❤ #foryoupage #scar #scarsarebeautiful

Discharge very soon!! 👏🏼 #chronicillness #gastroparesis #intestinalfailure #mitochondrialdisease #vascularcompression #smas #mals #ncs #mts #mcas #pots #cvid #hospital #hickman #tpn #gjtube

Precisely because you don’t know about my illnesses is why it feels so lonely. Feeling like no one will ever understand what you go through everyday does not feel good. This is a safe space where you can get educated but also surround yourself with people who understand your struggles. You are not too rare to care🤍 #chronicillness #chronicillnessawareness #gastroparesis #pots #ehlersdanlossyndrome #smas #ncs #vascularcompression #feedingtube #feedingtubeawareness #centralline #nottoraretocare #youarevalid #yourenotalone #mentalhealthmatters #greenscreenvideo #PetSmartMadeMeBuyIt

woke up from anesthesia and had to play coney island🎡 #evermore #swifttok #swiftie #coneyisland #chronicillness #ehlersdanlos #vascularcompression #potssyndrome #mcas

you are never alone in this battle. #chronicillness #chronicpain #mals #potssyndrome #mcasawareness #ehlersdanlossyndrome #ncs #vascularcompression #mthfrgenemutation

pain is real, but so is hope. as someone who lives with many chronic illnesses, I know how hard life can be on the daily basis. But just know you are doing enough, even if you have to rest most days. sending so many hugs to my fellow warriors out there. keep on fighting. you are so incredible and resilient. everyones journey looks different and thats okay!!! #ehlersdanlos #vascularcompression #maythurnersyndrome #nutcrackersyndrome #medianarcuateligamentsyndrome #superiormesentericarterysyndrome #ironinfusions #mthfrgenemutation #potssyndrome #mastcellactivationsyndrome

Open MALS revision & May Thurner surgery is finally scheduled for May 24 after almost a year of insurance issues. I’m so ready to kick vascular compressions & the severe pain they cause to the curb #chronicillness #centralline #tpn #vascularcompression #mts #mals #surgery #fyp

one step forward, two steps back. #chronicillness #raredisease #rarediseaseawareness #superiormesentericarterysyndrome #vascularcompression #vascularcompressionsyndromes #systemiclupuserythematosus #lupus #sjogrenssyndrome #rheumatoidarthritis #hypermobileehlersdanlossyndrome #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #pots #dysautonomia #fibromyalgia #fyp

just…no. #chronicillness #smasyndrome #lupus #sjogrenssyndrome #ehlersdanlossyndrome #rheumatoidarthritis #fibromyalgia #gastroparesis #vascularcompression #vascularcompressionsyndromes #potssyndrome #pots #dysautonomia #foryoupage #spoonie #smasyndromeawareness

And I forgot to mention the entire vascular access fiasco. I just want to go home & sleep in my own bed where I can actually feel safe #chronicillness #gastroparesis #intestinalfailure #mitochondrialdisease #cpeo #vascularcompression #cvid #mcas #pots #sepsis #centralline #gjtube #hospital #fyp

#asmilehidesalot #vascularcompression #mals #smas #ncs #mts #foryoupage #fyp

🧍🏻‍♀️ #chronicillness #smasyndrome #lupus #sjogrenssyndrome #ehlersdanlossyndrome #rheumatoidarthritis #fibromyalgia #gastroparesis #foryoupage #vascularcompression #vascularcompressionsyndromes #potssyndrome #pots #dysautonomia #spoonie

im fishin #chronicillness #pots #eds #vascularcompression #sih #cci #migraine #gastroparesis

trying to pass time while i wait for the call for my j tube surgery🧍🏻‍♀️#smas #rarediseaseawareness #invisibleillnessawareness #fyp #chronicillness #smasyndrome #lupus #sjogrenssyndrome #ehlersdanlossyndrome #rheumatoidarthritis #fibromyalgia #vascularcompression #gastricdysmotility #pots #spoonie #tubielife

varicose veins are really starting to become others. so, I'm doing something about it with this leg compression massager to help get that blood pumping & reduce inflammation and swelling. #legcompression #legcompressiontherapy #varicoseveins #varicoseveintreatment #bloodcirculation #vascularcompression #vascularhealth #massagetherapy #evlt #legswelling #inflammation #inflamationrelief

Everyday doing everyday activities #fyp #ad #gymshark #gym #handgrip #handgrippers #swole #vascular #vascularcompression #veins #vein #gymm #workout #tiktokmademebuyit #fypage #viral_video #fyppp #tiktokshop

Not everyone has every symptom, and several of these are fairly uncommon long-term issues that can develop because of lack of blood flow. I didn’t consider that I could have MALS for a long time because the main symptom that people talk about is abdominal pain. I didn’t used to think I had abdominal pain (but my surgeon was like, I think you probably do and just don’t realize it) and it didn’t really become noticible for me until I started prokinetics for nausea and early satiety #disability #chronicillness #ehlersdanlos #hypermobility #pots #dysautonomia #mcas #mastcell #gastroparesis #chronicpain #mals #tubie #vascularcompression #vascularconpressionsyndromes #malsawareness

Best tool in your gym box#fyp #ad #gymshark #gym #handgrip #handgrippers #swole #vascular #vascularcompression #veins #vein #gymm #workout #tiktokmademebuyit #fypage #viral_video #tiktokshop #fyppp

#disability #chronicillness #ehlersdanlos #hypermobility #pots #dysautonomia #mcas #mastcell #gastroparesis #chronicpain #tubie #mals #vascularcompression #medianarcuateligamentsyndrome