It’s been some time since I shared where Bella’s at in her medical journey. Shes still waiting (through bowel failure) for the call to get a full bowel transplant. 💚 We don’t know when that call will come but until then her specialists support her with ground-breaking treatments for rare disease. 💚 Today we embark on yet another children’s hospital admission to help elongate the life of her perminent IV (CVC) and improve her bowel function. 💚 Thank you for all the love & support BRAVElings. We feel it every day, Thank you for being here with us, through it all. 💚 #bellabrave #fyp #foryoupage #oceans #spiritleadme #strength #love #faith #medicalmom #organtransplantawareness #organdonationawareness #hirschsprungsdisease #nocolonstillrollin #brave