I filmed this video after finding out my NJ tube had flipped into my stomach only 5 days after it was replaced… I am trying to hold back the tears and keep smiling… I am physically and mentally exhausted with the constant tube changes, the constant endoscopies, the constant hospital trips and the constant pain and discomfort… I need things to change, I don’t understand what I have done to deserve this but honestly I’m stuggling… I am strugging to push myself to get this horrible procedure again and again and everytime I have to force myself to go… I just want there to be a light at the end of the tunnel but right now I don’t see any light at all just darkness…😢💔 #worried#upset#down#feelingdown#anxious#sad#struggling#ngtube#ng#njtube#nj#gastroparesis#epilepsy#fnd#nead#uc#colitis#ulcerativecolitis#eds#heds#pots#chronicpain#pain#chronicfatigue#fatigue#hypoglycemia#disabled#disabledcreator#creator#lipsync