Update continued… This is a perfect example of how fast I can go down hill. One sec I’m forcing myself to push through the pain & do a TikTok dance in an attempt to lift my spirits, then the next thing you know, I’m back at it again, throwing hands with the grim reaper, unable to roll over in bed without being in excruciating pain. One of my 2 remaining IVs blew just mins later, so people were then digging around in my arms and legs for HOURS trying to place another at 3am with no success. We then had no choice but to place an urgent femoral line around 6am, which also required A LOT of digging around, as well as 4 puncture sites due to all the scar tissue. Sadly, this means we didn’t get as long of a line holiday as we had hoped, but something is better than nothing. Mon night/Tues morning I started spiking fevers up to 102.5 and was super lethargic & out of it until Wed night. Cultures drawn while placing my femoral line Sun night/Mon morn are now growing VRE, which wasn’t exactly a big surprise considering they took me off my iv antibiotics that were treating it a few days ago. They put me back on daptomycin for that but may have to switch depending on what susceptibility testing says. (Update: it’s resistant to dapto so I’m back on zyvox) There’s so much I’m sure I’ve left out, but I’m so exhausted and my brain is mush, as I’m currently running a fever again. I’ve written this update a billion times but things keep changing before I can post, so thank you for y’all’s patience and continued love and support. You seriously mean more to me than I could ever put into words. I love you all so so much! Please keep all the good vibes and prayers coming. I definitely still need them to fight these infections off, especially the candida, as it continues to become more and more resistant to everything. Please pray for my medical team as well. I’m so thankful for the amazing nurses, RT, PT, drs, etc. in St Louis! While I realize theres still a high likely hood this infection could take me, they are at least trying to fight along side me & not just giving up, which is all I could ever ask for. 💚 #teamtricia #negu #fungemia #candidemia #bacteremia #sepsis #icu #BJC #intestinalfailure #terminallytricia #intestinalfailure #mito #mcas #eds #cvid