I may finally get my peg-j. Im tired of this joirney and everything surrounding it. The NJ tubes have literally made it aomi cant swallow properly and my speech and swallowing specialist’s associate saw that I couldn’t swallow my own saliva. This whole situation has been so hard on me and my partner and just because the tube works doesnt mean that it doesnt hurt to pass anythinf through it. I am tired of feeling like a lab rat and thanks to UCSF GI spending so much time trying to disprove my gastroparesis I literally can’t swallow anymore due to esophageal ossues which is an indication for a peg-j in and of itself. The irony. #fyp #fypage #fypジ #disability #disabilitytiktok #disabilitytiktokers #stiffpersonsyndrome #raredisease #terminalillness #pots #potssyndrome #potsawareness #dysautonomia #dysautonomiaawareness #mcas #mcasawareness #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlosawareness #autoimmune #autoimmunedisease #autoimmunewarrior #patientadvocate #patientadvocacy #advocacy #medicaladvocacy #medicaltiktok #doctortiktok #medicalgaslighting #medicalgaslightingneedstostop #medicalgaslightingawareness #gastroparesis #motilitydisorder #motilityfailure #chronicillness #chronicpain #chronicillnessawareness #chronicpainawareness #chronicillnesswarrior #chronicpainwarrior #chronicillnesstiktok #chronicpaintiktok #spoonie #spoonielife #spooniesoftiktok #njtube #njtubefeed #tubefeed #tubefeeding #feedingtubeawareness #medicalnegligence #medicalneglect #emergencyroom #nightmare #almostdone