I share her story in hopes for awareness and advocacy. This came out of the blue with no warning. There is no way anyone could have predicted this. Anaira was diagnosed with a rare condition called Functional Neurological Disorder. It’s not caused by structure abnormalities in the brain but rather by the way the brain sends and receives signals. It’s not a “hardware issue” it’s a “software issue” with how the brain communicates. Basically a disconnect between the mind and body. So essentially there is no cure nor magical medicine to just “fix” the problems. She will have good days where she needs no mobility support, and others where she needs some. Multiple therapies will help to an extend. Her FND is currently causing weekness in the legs, vomiting, and non-epileptic seizures. Please keep us in your prayers as we navigate this diagnosis. ##FNDaware##FND2024##LetsTalkFND##raredisorder##functionalneurologicaldisorder##livingwithfnd##CHOP##childrenshospital##nurologicaldisorder##neurologist##fndhope##findacure##hiddendisabilities

When he wakes up and only wants Dad.💙#fyp #tiktok #foryoupage #surgery #ZFlipClackdown #bekind #thebaby #youareenough #dadsoftiktok #viral #dad #pediatrics #childrenshospital #anesthesia #babiesoftiktok #babytok #momtok #views

If you’ve been following us for a while, you know that I’ve been trying to bring Brodie to a Children’s hospital for over a year and a half now. We finally made it happen and it was the most fulfilling thing I’ve ever been a part of. A special thanks to Summerlin Children’s Hospital & the children’s families for letting us come by and spread smiles and allowing us to capture the moments to share with you all to spread even more smiles. Thank you to Kassi Hanson, for helping make this happen. And shoutout to cameraman Key for the great camerawork and child communication skills (I left the original audio in the background l to hear his playful banter). 🐻❤️ #doglove #therapydog #goldendoodle #childrenshospital #spreadlove #WorldPrincessWeek #AEJeansSoundOn

if you watched + shared, thank you so much 😭 #epilepsyawareness #seizures #childrenshospital #epilepsywarrior

THEY FOUND A PILLOW FEATHER WEDGED ALL THE WAY IN OUR SONS NECK!! Here is his story!! #momsoftiktok #boymom #fyp #sahm #hospitalstay #childrenshospital #braylonmichael #youwillneverbelive #motherhood #motherhoodunfiltered #boymomjourney #viral #mumlifebelike #momlifebelike

#childrenshospital #tiktok #abuelo #amordelbueno🥰❤️

Last night we had to say goodbye to my sweet little friend Kam. Since he was born Kam has fought a long ,courageous battle with a very rare disease . Before he left us, this little hero donated some of his organs to help save the lives of many other kids. I was honored to escort Kam and his family on his Walk Of Honor through the halls of the Cincinnati Children’s Hospital . Kam is a hero and he’s no longer in pain. Sending all of my prayers and love to his family, friends, and the drs. RIP my friend. I’ll meet you in heaven one day! ❤️DIXIE. In honor of Kam, I encourage everyone to make sure they are signed up to be an organ donor . #theregoesmyhero #walkofhonor #organdonor #childrenshospital #giveback #pray #kids #childrenshealth #therapydog #dogsofinstagram #dog #love #dogsoftiktok

Pray for our sweet girl!! #childlifespecialist #childrenshospital #faithtok #callingonjesus #worshipsongs

A toddler in a light blue jumper stole the show at the Bidens’ annual holiday book reading at Children’s National Hospital. The president and first lady spent time privately with patients and their families for photos before Jill Biden read “‘Twas the Night Before Christmas” to a group of young patients. #joebiden #jillbiden #childrenshospital #whitehouse #holiday #christmas #politics #news

#bellabrave #rip #momsoftiktok #mom #breakingnews #childrenshospital #rileychildrenshospital #childhoodillness #mommatot #childloss #dad #dadsoftiktok #stjudeschildrenshospital #parenthood #parent #parents #parentsoftiktok #lifeisshort #kids #kidsoftiktok #famous #ryanreynolds #disney #nurse #nursesoftiktok #hospital #disneyworld #makeawish #toronto

“It broke my heart when she thought i was gonna poke her, these kids go through so much” - Rapunzel #theprincessprogram #fight #princess #hospital #childrenshospital #impact #poke #needlephobia #workingwithkids #talkingtokids #parentsoftiktok #kidstiktok #conversationswithkids #medicallycomplex #medicaltiktok #pediatrics #pediatric

#childrenshospital #childrensmentalhealth #childrensprincess #childrensmercy #childrenmercyhosptial #childrensmercykc #autismoftiktok #celbralpalsy #tracheostomy #trachtoddler #trachbabies #daddydaughter #widower #widowerdad #fyp #fypシ #fypシ゚viral #dadsoftiktok #babygirl #princess #fighter #stronggirl #oneday #christians #christian #christiandad #chrstiangirl #christiantiktok #christiangirl #graced #loved #forgiveness #saved #brokenheart #broken #smallsteps #PostitAffirmations #viral #viralvideo #viraltiktok #army #armylife #michigan #michiganders #michigangirl #grandrapids #kansas #kansascitychiefs #kansascityphotographer #kansasgirl #missouri #missourigirl #missingyou #sassygirl #toddlers #toddlersoftiktok #toddlertok #toddlers #toddlersbelike #singlelife #single #singledad #singlemom #singlemomsoftiktok #wildflower #asian #asiangirl #asians #irish #irishgirl #scotish

😔😔💔#MyTeacherWins #parati #alaantiguita #heartdisease #childrenshospital #vuelaalto #pose #astrology #collegelife #paratuinicio #foryoupage #tarot

Replying to @DrenaFisher Someone please help. I honestly believe its more than FND and that the drs are missing something #raredisorder #childrenshospital #nurologicaldisorder #neurologist #vitamind #vitamindeficiency #childrenshealth #lyme #lymedisease #functionalmedicine #fnd #autoimmunedisease

Replying to @gabypatyiscool Being 18 at a Childrens Hosptial isnt actually that uncommon especially when you have a rare condition such as mine! #dwarfism #lifestyle #trend #childrenshospital #bcchildrenshospital

#stitch with @K3VIN_G LETS GET THIS YOUNG MAN SOME LEGO! #lego #littlebrickscharity #brittlebones #littlebricksnation #childrenshospital

I usually have to cram all of the children’s hospital interactions into one video, so you dont get to see a full interaction like this. We try to do this with every kid during our visits! 🐻🫶🏾 #goldendoodle #therapydog #childrenshospital #spreadhappiness

Lullabies with elsa. Go support @Rosies_heart and give them some love #theprincessprogram #childrenshospital #corememory #elsa #lullaby #intotheunknown #makingadifference #heartwarmingmoments #singing #frozen #frozencosplay

Brodie, The Ultimate Therapy Dog aka “Your Local Serotonin Dealer.” 🐻😊💜 #therapydog #goldendoodle #childrenshospital #serotonin

#medicalmystery #nurologicaldisorder #nurology #gait #fnd #childrenshospital #pediatrics #toewalking #lossofbalance #medical

Recovering from the never ending effects from childhood cancer feels likes a neverending rollercoaster. Paisley is doing good now she ended up having pneumonia in both her lungs. After a start of some antibiotics she starting to perk back up #paisleysfight #thennow #lifeaftercancer #2yearsagovsnow #childhoodcancer #neuroblastomawarrior #childrenshospital

This trend 💔 #theprincessprogram #inanotherlife #inanotheruniverse #arielcosplay #princessanna #elsacosplay #rapunzell #maybe #childrenshospital #sickkids #workingwithkids

Ring ring! Facetime chat with Kenna! You answering? 🤪 #turnersyndrome #turnersyndromeawareness #childrenshospital #momsoftiktok #acc #27weekspregnant🤰 #chattygrwm #grwm #movingaccrosscountry #27weekspregnant #27weekspregnant🤰 #movingwithanewborn #movingpregnant

I miss you guys soo much!!🫶🏻🪞🏥😅 #fyp #fypシ #grwmsbyvitoria #blowthisuppls #preppyvids #preppyaesthetic #plslike #bostonchildrenshospital #childrenshospital #nurses #friends

lo bañe, le quite la ropa, le di médicamento y nada, siento tan feo ver enfermo a mi bebe, el es un niño que no para, q estado enfermo pero ni asi se calma, supe que hoy si se sentia mal porque no hacia nada, estaba quieto y no queria comer 🥹 #dayinmylife #childrenshospital #hospital #vlogsdiarios

It was so great meeting Alexis from @CMN Hospitals . Wishing the best of luck to her… #childrenshospital #childrenwithcancer #childdevelopment @Are You Happy?

I just want to thank all the staff at RACH for their kindness, patience and understanding today with Max. I could have never imagined how smoothly this was for him, i was so worried and the fact they were so lovely helped me fully relax. Max actually ended up taking a liking to his nurse Rory who i cant thank enough for being so kind. The anesthetist Allan was outstanding and put my precious little angel off to sleep so gently with zero upset. ❤️ We are home already due to the staff being so quick and understanding of maxs struggles with waiting and changes , Max is eating and resting up with lots of mummy cuddles ❤️🌈#autism #autismawareness #aberdeen #childrenshospital #fyp

My poor baby broke her Elbow this week . She is such a brave girl 🥹💗 #brokenelbow #toddlersoftiktok #momsoftiktok #emergencyroom #emergency #brokenbone #cast #pinkcast #amadecasa #sahmsoftiktok #childrenshospital #fracturedelbow #poorbaby #shessobrave #brave #recovery #momguilt #emergencia #toddlermom #toddlerlife #paratiiiiiiiiiiiiiiiiiiiiiiiiiiiiiii #fypage #mamisdetiktok #latinacontentcreator #coloradocontentcreator

Replying to @amyamato3 Child like faith 🦋💗 #childrenshospital #callingonjesus #worshipsongs #christiantok

FIGHTER ❤️‍🩹 #brownsbergerbabies #momsoftiktok #openheartsurgery #heartdefect #childrenshospital #recovery

Dont mind me, i just have something in my eye watching this 😢 #theprincessprogram #childrenshospital #pediatrics #heartwarrior #elsa #heartwarmingmoments #icequeen #cosplayer #nonprofitsoftiktok #magic #dreamscometrue #makingdreamscometrue #hospitaltiktoks #hospitalvisit #wefightwithmagic

Happy to see my nephew smile agion 🙏🏼❤️#fuckcancer#childrenshospital#loveyou#yougotthis

All proceeds from this song go to a mom battling cancer and her 7 yr old son #giveback #donation #childrenshospital #meaviatoys #poppy #donationvlog #vlog

Massad esta manana #melissaparedesoficial #melissaparedesoficialmelisforyou❤ #tj #tjmaxx #melissabenoist #tjmaxxhaul #melissaymasad #saudiasuadia🇸🇦 #teamo #tjmaxx #love #teamo #love #livelynightout #lovestory #lovestory #loveyouall #lover #livelynightout #dog #foruyoupage #dogsoftiktok #depresion #dwpre #hospi #hopital #childrenshospital #hospitallife #hospitalplaylist #massad #massadymelissa #massadaltamimi #massadymelissa👩‍❤️‍💋‍👨 #vir #birthday #viralvideo #viraltiktok #virall #espanol #esposos #spain🇪🇸

Growing our hospital programs is my #1 priority this year and we are off to an incredible start. Thank you for growing us so quickly so we can bring change :) #paperscrubs #childrenshospital #pedsnurse #mentalhealth #healthcare #mha #community

Kaydyn is officially halo free (for now)!!!! We are taking this time for her to grow and heal until further surgeries are needed. We are by no means out of the woods and her spine is still pretty frightening/complex but we are so happy to have this time halo free. She had it removed December 18th in Delaware and has been handling it well. Yay, Kaydyn! 🥰😃❤️ #kaydynstrong #kaydyn #campomelicdysplasia #dysplasia #dwarfism #delaware #nemours #childrenshospital #hospital #mri #halo #haloremoval #removal #byebye #bye #fy #fyp #foryou #foryoupage #foryourpage #spinalfusion #kyphosis #orthopedics #orthopedicsurgeon #neuro #neuroscience #happy #holidays #holiday #christmas #newyear #newyearseve #2024 #nicu #tiktok #baby #babies #babiesoftiktok #babiestiktok #babytok #mom #momsoftiktok #momlife #momtok #moment #sohappy #toddler #toddlersoftiktok #toddlers #toddlerlife #celebrate #celebration #bigdeal #wilmington #wilmingtondelaware #tennessee #chattanooga #nashville #tn #knoxville #clevelandtennessee #babygirl #funtimes #merrychristmas #family #party #journey #medicaljourney #familyfun #familytime #story #tiktoknews #news #loveher #k #girls

Replying to @nomasparaelpinchechisme1 After 6 hours the answers we received Request for Echocardiogram: Denied Blood Test for Mono: Negative X Ray: No enlarged Heart, No liquid in the lungs or around the heart Nose swab: Negative for viral infections Body Shaking : Spasms #health #medecine #doctor #nurse #emergency #hospital #heart #childrenshospital #momlife #motherhood #motherhoodunfiltered

This is Joy. Joy is a pediatrics nurse. In other words, she is a real-life super hero. Thank you Joy for all of the amazing work you do. And thank you @CMN Hospitals for supporting hospitals all over the U.S. If you are touched by Joy, and want to join her in her efforts to take care of her patients, consider donating to Children’s Miracle Network Hospitals through the button on this video. Every dollar is a life saving dollar. #pediatrics #childrensmiraclenetwork #childrenshospital #MariaFareri #leukemia

Thank you for the continued prayers and support. #lungdisease #childrenshospital #miracle #prayer

Repost from February bwcause this sweet girls celelbration of life is this weekend #theprincessprogram #celebrationoflife #rapunzel #rapunzelcosplay #healingincantation #healinginnerchild #childrenshospital #californiaadventure #lunamunabrave #lunaslight

Kaydyn was very curious about all the lights and her surroundings when she was being rolled away to the OR for her scopes on Monday. I hate this moment everytime. I always know shes in good hands but it never gets easier. #complex #genetic #genetics #ventilator #kaydynstrong #vent #dwarfism #campomelicdysplasia #vanderbuilt #dysplasia #nashville #tn #tennessee #surgery #recovery #medical #spinalcordinjuryrecovery #spinalfusion #pulmonary #ent #hospital #childrenshospital #medicaltiktok #rare #raregenetics #fyp #foryou #foryoupage #foryourpage #fypシ #tiktok #hard #goodbye #seeyousoon #mom #mommy #mommydaughter #mother #motherhood #momsoftiktok #babiesoftiktok #babiestiktok #baby #toddler #toddlersoftiktok #babies #babylove #babytok #momlife #sweek #curious #lights #surroundings #mommylife #motherlove #medicalmom #complexcare #tracheostomy #gtube #tracheomalacia #airway #hardest #sweetbaby #seeyoulater

Sometimes life throws you a curveball and you just have to take the strike and get better for the next pitch. #littlebrickscharity #childrenshospital #littlebricksnation

You did so good papi 🥹 #epilepsyawareness #epilepsy #doosesyndrome #childrenshospital

My sister’s son has Lukemia and hes just adorable! Hes getting ready for a bone marrow transplant! #lukemia #childrenshospital #childrencancer #childrencancerawareness #oncology #childrensoncology #oncologynurse #cancersucks #transplant #bonemarrowtransplant #fyp #fypシ #fypage #fypシ゚viral #fyppppppppppppppppppppppp #fypp #foryou #foryoupage #foryour #foryourpagе #foryourpagetiktok #popular #kids #kidsoftiktok #cancerinkids #cutie #3yearsolds

#medicalmystery #nurologicaldisorder #nurology #gait #fnd #childrenshospital #pediatrics #lossofbalance #brainlesion #seizure

A little day in the life 💜 Raedyn had 3 big appointments today! This is what so many of our days look like! #risewithraedyn #pfeiffersyndrome #craniosynostosis #trachbaby #acceptance #inclusion #onmyowntimeline #wheelchairlife #childrenshospital #dayinthelife #ditlofamom

Replying to @Coffeemommaforlife #nurse #rn #hospital #childrenshospital

#duet with @The Plastering Champ® #childrenshospital Lets Use This App To Put Smiles On These Wee Kids Faces At Christmas! ❤️ The wishlist is in the bio and i will be placing it in ours! 🙌🏼 share/repost or even buy a wee gift! 🎅❤️🧑‍🎄 #charity #kids #smile #christmas #share #repost #smallbusiness #fyp #fypage #foryoupage

This was yesterday but Today Jaxon is having a better health day. @Kaz #toddlers #prayer #miracle #childrenshospital #bestfriends

(Mom gave permission to post) we were supposed to visit this beautiful girl tomorrow and things changed when there was so many complications with her surgery. Its not fair what these kids go through. They are so strong. See you next week Princess ❤️#theprincessprogram #hospitaltiktoks #icu #pediatricicu #childrenshospital #elsaandanna #princesses #postsurgeryrecovery #wholesomecontent #healingvibes #magicmakers #wefightwithmagic