I still remember vividly how i felt the day that we got the call from our son, Lincoln’s neurologist, only a few months after coming into our family. Hearing words like “stroke, rare brain disease, and neurosurgery” were enough to drain the blood from my face as I sat on the floor of our room listening carefully to everything the doctor said. Lincoln lay napping just a few steps from me. I hung up the phone and went over and watched him sleeping soundly and just began to weep. This beautiful child that we had fallen head over heels with was facing such a hard journey and it absolutely broken my heart. Moya Moya is a rare condition that restricts the blood vessels in the brain and can lead to many health complications. Most of you know that over the past few years he has overcome so many challenges and come through many surgeries and we are overwhelmingly grateful to the Lord for sustaining him and us on this journey. Our Lincoln Jie Rui is one of the bravest and smiliest people we’ve ever met- I can’t name a happier child who lights up the room with his laughter even over the smallest and simplest of things. Despite his repetitive health challenges and scary diagnoses, he is a warrior and we are so honored to be able to walk this path with him. ❤️❤️ #rarediseaseday #moyamoya #specialneedsmom #specialneeds #warrior #boymom #grateful