@ASHLEY, ALIVIA & FAM

💜

Thankful for the best parents. 💜

It has taken her speech, the ability to walk, the ability to eat by mouth, her respiratory health, and her love of swinging. It has brought on seizures, movement disorders, days without sleep, dystonia, nerve damage, progressive brain damage, cellular damage, organ damage, sundowning, neuological storms, myoclonis, muscle contractures, muscle deterioration and so much more. The smiles and laughter are back currently, after missing them for so long. We hope they stay a while! 🫶🏼 There are more hard days than good at times. There are more sleepless nights than not. But, she is still happy. She loves the outdoors, she doesn’t mind a feeding tube and she LOVES social interaction and adventuring out of the house. We hope to have many more years with you, H. Thank you for fighting and showing me every day, that there is always light in the dark. You are SO LOVED. 💜